I always get lots of loving comments and emails from you guys, asking if I’ve tried this or that for Ashley. For those of you who don’t know, Ashley has autism and global delay. After the Gluten, Constipation, and Autism post, I had even more questions than usual, and sadly, I don’t have time to answer them all individually. That’s why I shared some personal information on Facebook this week. I want to be completely open and honest with you, and it’s easier to reach large numbers of you here and on Facebook.
If you missed my Facebook update about this, you can still find it there. But I wanted to briefly talk about it here, since some more questions and comments came up as a result of it.
Speaking as a mom who has a child that was injured, and as a result has the development of a toddler (a toddler who isn’t potty trained), there’s a little secret about us that you may not know: Sometimes when we get suggestions for ways we could help our child, our brain takes that suggestion and this little voice in our head says, “Maybe if you had done that then things would be different (better) for your child.” It’s a very bad little voice that I call “the blame monster.”
What you have to know is that this blame monster is completely in our own heads. It’s in no way the fault of the person giving the suggestion. And it’s a monster that we parents of children with special needs must destroy, sometimes over and over again. I have personally defeated that monster more than a few times. I have found grace. Ashley will probably always live with us, and I’m so good with that. There is no one on this earth, other than my husband, with whom I would rather spend the rest of my life.
Now I want say a little bit more about MTHFR. I have to tell you, I didn’t remember that it was even called MTHFR until I got the issue of Paleo Magazine where my photo was on the cover. I was so crazy excited when I looked inside, and saw the article just before mine about MTHFR. I’m not exaggerating when I say that I was jumping up and down when I read it! It’s been seven years since they found the MTHFR mutation in Ashley. SEVEN.
In fact, Andy wasn’t even sure that I was correct about Ashley having it! Haha! So last night he got out Ashley’s box (yes, box) of paperwork to look for that medical record from so long ago. All he was sure about was the memory that the doctor said Ashley’s body couldn’t detoxify heavy metals, that she needed glutathione and phospholipids (Because phospholipids are the ones that can cross the blood-brain barrier. This is why Ashley takes Krill Oil. Not all fats are the same.). (As you know if you follow me, helping Ashley detoxify has been one of our primary objectives since she was four, when we first chelated.)
Andy found the paper, and sure enough it was MTHFR. Then I held my breath while he read to see which one/s she had. Since you asked, Ashley only has 1298. And if you have no idea what any of this MTHFR stuff is about, then you can read more HERE 🙂
The great news is, since Ashley has been “regular” (You know, pooping every day. Sorry, I had to say the “p” word again :-), and grain-free, she has been able to detoxify much more easily. In the past (when she was gluten-free, but not grain-free), giving her glutathione alone didn’t do anything. Now that she is grain-free and regular I can only give her small amounts of glutathione at a time, because it’s become so effective. (You should never rush pulling heavy metals, and you should always work with a professional, like a DAN! doctor.)
Of course I wish Ashley would use the toilet, but otherwise all I want for her is to be the happiest she can be. When she is glutened or constipated she is not happy—That’s when the symptoms of autism reappear—The fits, screaming, throwing, crying. That’s why it’s so important.
A few other things about Ashley:
I wish you could hear Ashley’s laugh. She has the most infectious laugh I have ever heard. I dare you not to smile, for your face not to soften, for your heart not to melt, when you hear Ashley laugh.
She is my biggest snuggler. Zoe and Ginger are always busy working on this and that, but Ashley always has time to curl up with me and snuggle.
She loves to go to the grocery store. She tells everyone she passes, “Have a nice day!”
Years ago, when we still lived on the East Coast, my father-in-law sat us down at our kitchen table and said he had to tell us something. Speaking of Ashley he said, there are some people whose only job is to show love. To be love.
Ashley is pure love.
Read more under the post label, “Recovering Ashley.”